Ten Years

Jun 30, 2011 by

Dear Mom,

 

You’ve been gone for ten years.

 

When you look at it on paper, 10 years sounds like a long time. A decade, double-digits, a reason for a high school reunion.  But when I close my eyes, ten years later, I’m immediately back in the ICU, listening to the hypnotic beeps of the monitors and the stifled sounds of the hallway, dizzy from the smell of sanitized hospital stuff and patients’ last breaths.  I am instantly transported back to your bedside with my head pounding as I concentrated on your every move.  I am again paralyzed with the fear of missing your last breath or the miraculous recovery I think I still held out for.  I remember how badly I had to pee.

 

There’s really no other way to describe the night you died but to say time stopped and my world shattered. We were with you until the end, when you finally succumbed to the fight that your body could no longer take. You were brave, you were scared, and you were beautiful.

 

The beeping, the smells, the stifled air, it was all too much. And I really, really had to pee. I think I sat there for 18 hours, maybe more, not flinching. I don’t remember. I wouldn’t leave. I couldn’t.

 

You were lucid, even funny, then very confused.  You talked to people who weren’t in the room and were nagged by a discomfort in your leg.  Slowly your body started to shut down. Christy eventually coaxed you to where you needed to go.  It took some time, as you didn’t want to leave.  Truthfully, I didn’t want you to leave either and I think you knew that.

 

Eventually, we all told you it was ok to say good-bye.  I told you to go. The words were almost impossible to form let alone say out loud. I sat motionless, watching you finally, gracefully go.

 

My world shattered. Time stopped.

I really had to pee.

 

I don’t like to think about you in that room and what it was like after you stopped breathing; after they disconnected that insufferable beeping monitor and the florescent lights that were too bright.   You looked yellow, but somehow, in your true manner, still very, very beautiful.

 

I kissed your cold forehead and I knew you were no longer in the room. You looked peaceful.  It’s absolutely true that when someone’s soul has left her body it is obvious. Yours had clearly, finally, moved on, and I felt some relief at that.

 

I don’t remember if I said anything more to you than: ‘I love you,’ because I’d never wanted to run away from anywhere so fast in my life.  But then again I still had to pee…

 

In ten years so much has happened and I have written to you every day, in my mind at least. This is to make up for the fact that we used to talk on the phone every day, sometimes three, four times a day, and now nothing, silence.  Since you don’t answer, I thought maybe if I started writing it down, you’d answer me in some other way.  At least I can hope.

Love,

Sara

Always smiling and joking. Our last visit to the Emergency Room - 2000

 

Next month in July marks 11 years since my mother, Susan, passed away from cancer. I’ve held on to this post for awhile, not sure whether or when to share it due to its personal nature. Today, felt right. It basically shares one of the reasons why I’m blogging and revisits that evening in the ICU. I’ve been reading Meaghan O’Rourke’s book, The Long Goodbye lately and have found it deeply moving and cathartic. I guess this is why I decided to post this ‘letter’ now.

With love,

Sara

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A Bright Light Gone Out

Jun 22, 2011 by

For this Wordless Wednesday I am posting pictures in honor of Lisi.

She was affectionately known to her family and friends as Lisi Bug and whenever we see a ladybug we will think of her, with a smile and a tear. For she was a truly exceptional person that touched many people.

She was the very first person I trusted to watch my Anna as an infant and the daughter of a close family friend. She was robbed of a lifetime and I’m both angry and sad.  She should have grown up to be a mother herself one day. She would have been amazing.

Today in my garden, I saw this ladybug and reflected on this beautiful soul.

 

 

She has left us far, far, far too soon at age 30.

 

 

 

In honor of Lisi,

a bright light in this world -

gone out far too soon,

please ‘live your life with fullness in your heart’.

 

And next time you see a ladybug, be reminded that there is a beautiful angel named Lisi, looking out for us all.

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Mommy why is my fish doing the backstroke? R.I.P. Holla

Mar 6, 2011 by

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Today we said goodbye to Holla, my 5 1/2 year old daughter’s goldfish. He She was more than just a party favor from my nephew’s birthday 2 months ago (just wait dear sister, just you wait…) he she was our pet.

Goodbye Holla. died March 6, 2011

I was shocked this morning when I noticed the fish belly up and bloated in the tank; she had been happily swimming the night before.  Anna immediately burst into tears and sobbed when I stupidly blurted out: “Oh honey, I think your fish has died.”  Clearly I was not prepared for this moment, although I probably should have been.

Because we’ve always spoken openly about “Mommy’s Mommy” and how she’s in heaven now, I thought we had established a good vocabulary on the subject.  Losing a little goldfish wouldn’t be traumatic… right?  But I couldn’t have been more wrong and quickly realized that a 5 1/2 year old has a lot more questions than she did when she was 3.

After LOTS of cuddles and finally dry eyes, we started talking about Holla and how she went to “fishy heaven.”

But when she asked through the sniffles, “Why did Holla die?” I again stupidly said: “Maybe Holla was sick…”

The little voice on my shoulder screamed: “Survey says…WRONG ANSWER!”  Apparently, the first rule in talking to your kids about death and dying is don’t use the word ‘sick’ or else you are going to freak them out the next time they or you come down a runny nose!

Clearly I was botching this explanation so I ran and got one of my new favorite parenting books. I needed a script to follow here as this was just too important to screw up. Luckily I had heard a great child development specialist, Betsy Brown Braun, recently on a Parent Experiment podcast.  She was so compelling that I immediately bought 2 of her books, the first being: Just Tell Me What To Say. It’s become my go-to manual as she has great advice and actual scripts on how to talk to your kid(s) about death and other tricky subjects.

So I literally read from the book, and then went a little off-script and mentioned that Holla’s little fishy body had stopped working and her soul had moved on.  Wait… Her WHAT?… Mommy, what’s a soul?

Er… Ahh… Ummm…. Hold On… <fervently flipping the pages ahead…>… let’s see… ah yes…

So I went on to explain to her, in 5 1/2 year old terms, what a soul is. That it’s the part of you that you can’t see but is what makes you – you. Not an easy concept to explain. The best part was Betsy Brown Braun had a little hands on demonstration you can do with the kids.

  1. Find a clear plastic or glass cup.
  2. Fill it three-quarters of the way with warm water.  Ask your child to taste it and confirm that it is indeed water.
  3. Fill a small cup with granulated sugar. Ask your child to taste it and confirm that it is indeed sugar.
  4. Mix several tablespoons of the sugar in the water, stirring until it is dissolved.
  5. Ask the child where the sugar went.  Hopefully, she will say that it has disappeared, it is gone.
  6. Ask her to taste the sugar-water. She will say it is sweet.
  7. Ask her why it is sweet. Hopefully, she will say because there is sugar in it.
  8. You will reply: So, the sugar is there even though you can’t see it? It’s like a person’s soul. It is there, but you just can’t see it.”

Genius right? Anna got it and liked the fact that we had done a little experiment too. We moved forward with our day and planned a service to say good-bye to Holla in the backyard. Her four year old little brother, Jack, could have cared less, he kept saying that Holla had already been flushed. Nice, right??

Anna made a card that said “I love you Holla” that we buried with her in the rain.

In the end, I was the only that got teary-eyed over the fish – it was such a sweet and touching moment, but then again I’m the mush.

Following the service, Anna immediately asked when we can get another fish.  Um… ok… I guess you are ok…

So tell me, how do you talk about these trickier topics with your kids? Any good scripts to share?

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A New Memoir (is that an oxymoron?) – The Long Goodbye

Mar 1, 2011 by

Today I was introduced to an interesting author, Meghan O’Rourke via the New York Times article title: Why We Write About Grief.  The article intrigued me not only because it discussed Ms. O’Rourke’s new book, The Long Goodbye: a memoir,  about losing her mother to cancer which obviously resonates with me, but also because the topic is personally relevant as I try to continually refine the purpose of this blog.

My intention with Periwinkle Papillon is to have posts that are both a mix of memories of my mom as well as topics that interest me in my daily life.  I don’t want this blog to feel heavy but I do want it to accurately reflect what it’s felt like to be both a “motherless daughter” and now a “parentless parent“.  See, just those terms feel sooo heavy…

In The Long Goodbye, Ms. O’Rourke writes about losing her mother at the age of 53 when she was 30.  Pretty much the same age for me and my mom: she passed away at 53 and I was 25. She writes about the aftermath of this loss at such a pivotal age and trying to understand how to grieve in the modern world around her. When I read this interview in the New York Times, I was struck by this quote:

Memoir is usually seen as an internal psychological exploration. But I felt that I wasn’t just writing about the personal loss of my mother; I was also mapping the intimate contours of this mysterious transformation we all experience, because that’s what I’d wanted when my mother died: a more resonant description than “the stages of grief” could offer.

- Meghan O’Rourke

It’s like she read my mind.  Elizabeth Kübler-Ross is the authority on death and grieving – but the 5 stages of grief just didn’t sum it up for me. Still don’t.

I’m really looking forward to this book, it’s available now for pre-order at Amazon (due out in April):

The Long Goodbye - Meghan O'Rourke

Let me know if you read it and we can do an on-line bookclub.

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